KCNB1 LENNOX GASTAUT SYNDROME GRATEFUL FOR N-LOREM FOUNDATION
KCNB1 LENNOX GASTAUT SYNDROME GRATEFUL FOR N-LOREM FOUNDATION
When Mostyn's suffers violent tonic clonic seizures or clusters of various types of seizures, they often strip him of the progress he has worked so hard to achieve. It can take days or weeks for him to recover and get back to his baseline, particularly if we have to use rescue medications or increase his medication dosages. When Mostyn is able, he works about as hard as Dewayne Johnson to make forward progress.